Needs and opportunities for improvement in the management and monitoring of gynaecological cancer in Spain

• Ainhoa Madariaga ^[4] ; Marisa Cots ^[5] ; Charo Hierro ^[6] ; Carlos Robles ^[1] ; Sonia Garrido ^[7] ; Maria-Pilar Barretina-Ginesta ^[2] ; Ariadna Serrano ^[8] ; Marta Serena ^[8] ; Patricia Salcedo ^[8] ; Noelia Mariátegui ^[8] ; Eva Guerra ^[3]
  1. [1] Hospital Universitario de Valme

     Hospital Universitario de Valme

     Sevilla, España

     
  2. [2] Institute Catalá Oncología

     Institute Catalá Oncología

     Barcelona, España

     
  3. [3] Hospital Ramón y Cajal

     Hospital Ramón y Cajal

     Madrid, España

     
  4. [4] Department of Medical Oncology, 12 de Octubre University Hospital, Madrid, Spain
  5. [5] Asociación Cáncer Mama Ovario Hereditario (AMOH), Barcelona, Spain
  6. [6] Asociación de Afectados por Cáncer de Ovario (ASACO), Madrid, Spain
  7. [7] Department of Gynaecology, Hospital Universitario de la Paz, Madrid, Spain
  8. [8] Opinno Healthcare, Madrid, Spain

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• Localización: Clinical & translational oncology, ISSN 1699-048X, Vol. 28, Nº. 5, 2026, págs. 1683-1690
• Idioma: inglés
• Texto completo no disponible (Saber más ...)
• Resumen

  • Objectives:

    The primary objective of this study is to identify opportunities to improve clinical and comprehensive support of patients diagnosed with gynaecological cancers in Spain. Secondary objectives included identifying the unmet needs regarding awareness and access to screening strategies of gynaecological cancers in Spain.

    Methods:

    A mixed-methods design was used, combining qualitative and quantitative research in 235 participants. The qualitative component comprised semi-structured interviews and focus groups with 12 patients with gynaecological cancer, 6 caregivers, and 11 healthcare professionals. The quantitative component included anonymous surveys from 44 women with gynaecological cancer and 162 women from the general population. Descriptive statistics were applied.

    Results:

    The qualitative study revealed needs in prevention, early diagnosis, emotional support, nutrition, physical activity, and sexual health. Among surveyed patients, the mean knowledge of gynaecological cancer before diagnosis was low (2.3/6). Substantial limitations were reported after diagnosis in physical activity (59%), diet (43%), and sexual life (70%), and 55% experienced psychological consequences. Fifty-six percent reported insufficient non-pharmacological information from their healthcare team, and 59% sought support from patient associations. In the general population, 40% of women had never received information on gynaecological cancer.

    Conclusions:

    Improving care for women with gynaecological cancers in Spain requires action at two levels: (1) strengthened early detection through awareness and screening strategies, and (2) expanded supportive services including nutrition, psycho-oncology, physical activity programmes, and sexual health interventions. Addressing taboos around women’s sexuality and leveraging patient associations and preferred communication channels should be priorities.