Factores que influyen en la sexualidad de la población con espina bífida
- Autores: Anna Bujons Tur
- Directores de la Tesis: Félix Millán Rodríguez (dir. tes.), Xavier Rius Cornado (dir. tes.)
- Lectura: En la Universitat Autònoma de Barcelona ( España ) en 2011
- Idioma: español
- Tribunal Calificador de la Tesis: Antoni Gelabert Mas (presid.), José Emilio Batista Miranda (secret.), Albert Borau i Durán (voc.)
- Enlaces
- Resumen
• Objectives: The objective of this Doctoral Dissertation is to make a contribution to the understanding of the sexuality of adult population with SB – to describe their true sexuality and to analyse the relationship between their overall characteristics (gender, academic level, housing level, and also their neurologic, orthopaedic, digestive, urologic and psychosocial aspects) and their sexuality. • Hypothesis: Independently of their gender, the population with SB show a series of neurologic, urologic, psychosocial and self-perception patterns that could influence every different area of their sexual and reproductive life: the level of their sexual information, maternity, sexual desires, orgasm, partnership, masturbation, and erection and ejaculation dysfunction. • Material and Methods: A study of 250 persons with congenital SB, aged 18 years and over who are members of the SB Associations in their cities (Madrid, Barcelona and Málaga). A questionnaire was developed with such purpose consisting of two sections, the first one dealing with general-purpose questions on SB, and the second one on sexuality matters. From all the variables susceptible to be studied, priority was allocated to female and male sexuality and its perception, the differences as a function of gender, desire, intercourse, urinary incontinence due to antincontinence dispositives, and specific sexual information. Potential relationship of independent variables and dependent variables was analysed. • Results: Fifty-five percent of the women reported SB sequel-related problems such as pain during the arousal phase (17.9%) and during penetration (28.2 %), a dry vagina (10.3%), contraction of the vagina that hampered penetration (12.8%), and 33% complained of lack of pleasurable sensations. Forty-eight point eight percent of the study population has never had intercourse. Regarding frequency, 37.1% of those who had have reported to have sex less than once per month, and 62.7% reported intercourse once per month and more. Forty point six percent of patients who do have intercourse experience urinary incontinence during it. Sixteen point eight of the study patients did not have general sexual information available, whereas 83.2% did have such information. As to the degree of satisfaction with the information received, 38.4% considered it to be insufficient, 49.6% said the information was sufficient, and 12% graded it as almost nil. Regarding sexuality while suffering from SB, 37.7% had received no information whatsoever and the remaining 62.3% had received it. Sixty-eight point nine percent from that 62.3% (111 patients), considered such information was insufficient, whereas 31.1% graded it as sufficient. Self-catheterisation means no difference either for masturbation or for intercourse. Within the self-catheterisation group, many more males than females practised masturbation – 77.1% vs. 28.8%, i.e. quite a significant difference. • Conclusions: ? The SB population is not very different from the general population regarding their sexuality; it is, however, conditioned by the sequels of their malformation, by socio-cultural factors and by their self-perception. The greatest deficits can be found in the general and the specific sexual information received by them. ? In women with SB, sexuality is conditioned by their “saddle” altered sensitivity, by their incontinence, by the use of antincontinence dispositives and by their posture limitations.
