Reconstruction of Daily life: The Lived experience of the Family post-caregiver
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Catarina Inês Afonso
[1]
;
Luisa D’ESPINEY
[2]
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[1] Instituto Politécnico de Leiria
Instituto Politécnico de Leiria
Leiria, Portugal
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[2] Centro de Investigação, Inovação e Desenvolvimento em Enfermagem de Lisboa, Escola Superior de Enfermagem de Lisboa, Portugal
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- Localización: New Trends in Qualitative Research, ISSN-e 2184-7770, Nº. 11, 2022
- Idioma: portugués
- Títulos paralelos:
- Reconstrucción de la vida cotidiana: la experiencia vivida del pós-cuidador familiar
- Reconstruction of Daily life: The Lived experience of the post-family caregiver
- Enlaces
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Resumen
- español
Contextualización/Justificación: Pensar no pós-cuidador familiar é reconhecer a complexidade inerente à trayectoria do cuidado. Embora a experiência de cuidar tenha sido ampliamente explorada, pouco se sabe sobre a experiência do pós-cuidador, a reconstrução do seu quotidiano é esencial para compreender a retomada da vida do familiar pós-cuidador.
Objetivo: Esta investigação partiu da pergunta: Qual é a experiência do pós-cuidador na reconstrução do seu cotidiano? Tem como objetivo compreender a experiência dos pós-cuidadores na reconstrução do seu quotidiano. Este estudo baseia-se numa metodologia fenomenologica com um desenho interpretativo inserido na Abordagem Fenomenologica Interpretativa. Os onze participantes foram previamente acompanhados by uma Equipa de Cuidados Continuados Integrados. Organização: Foi realizó una entrevista, em profundidade não estruturada, conduciendo os participantes a partilhar momentos significativos de reconstrução da sua life quotidiana, após o falecimento da pessoa cuidada.OO , com o passado, recordando o que foi vivido, com o presente, no reconhecimento de si, na resposta em permanência ao regresso ao mundo e à vida e, com o futuro vislumbrando um imaginário de desafios e de incertezas. É no quotidiano que os participantes se reencontram consigo, com os outros e com o mundo. Consideraciones finales: Através deste estudo, os enfermeiros poderão aceder à experiência vivida destes pós-cuidadores e desafiar-se na prestação de cuidados, valorizando a perícia na atenção, melhorando a sua intervenção assistencial. Poder-se-á desafiar as Equipas de Cuidados Continuados Integrados nas Unidades de Cuidados à Comunidade a reforçar redes de apoio aos pós-cuidadores familiares com ligação e envolvimento dos parceiros e recursos sociais.
Palavras-chave: Experiências de Vida [MeSH y DeCS], Fenomenologia [MeSH y DeCS], Enfermagem [MeSH y DeCS], Cuidador Pós-Família (Palavra-Chave), Cotidiano (Palavra-Chave)
- English
Contextualization/Justification: Thinking about the post-family caregiver is recognizing the complexity inherent to the trajectory of care. Although the experience of caring has been widely explored, little is known about the experience of the post-caregiver, the reconstruction of their daily life is essential to understand the resumption of life of the family’s post-caregiver.
Goal: This investigation started from the question: What is the post-caregivers’ experience in the reconstruction of their daily life? It aims to understand the post-caregivers' experience in the reconstruction of their daily life. This study is based on a phenomenological methodology with an interpretive design embedded in the Interpretative Phenomenological Approach. The eleven participants had been previously accompanied by an Integrated Continuous Care Team.
Organization: An in-depth, unstructured interview was conducted, enabling participants to share significant moments after the decease of the person they had taken care of and to share how they reconstruct their daily life. The phenomenon of reconstruction daily life of this participants' is revealed in the dynamic of the simultaneous relationship: with the past, recalling what was experienced, with the present, in the recognition of the self as well as in their continuous response as they return to the world and to life and, with the future, envisioning an imaginary of challenges and uncertainties. It is in everyday life that participants are reconnected with themselves, with others and with the world.
Final Considerations: Through this study, nurses will be able to access the lived experience of these post-caregivers and to challenge themselves in the way they provide care, valuing the expertise to pay attention, improving their intervention in presence. The Integrated Continuous Care Teams in the Community Care Units could be challenged to strengthen support networks for family’s post-caregivers in cooperation with other partners and social resources.
Keywords: Life Experiences [MeSH and DeCS], Phenomenology[MeSH and DeCS], Nursing [MeSH and DeCS], Post- Familily Caregiver (Ke yword), Daily Life (Keyword)
- português
Contextualization/Justification: Thinking about the family post-caregiver is recognizing the complexity inherent to the trajectory of care. Although the experience of caring has been widely explored, little is known about the experience of the post-caregiver, the reconstruction of their daily life is essential to understand the resumption of life of the family’s post-caregiver. Goal: This investigation started from the question: What is the post-caregivers’ experience in the reconstruction of their daily life? It aims to understand the post-caregivers' experience in the reconstruction of their daily life. This study is based on a phenomenological methodology with an interpretive design embedded in the Interpretative Phenomenological Approach. The eleven participants had been previously accompanied by an Integrated Continuous Care Team. Organization: An in-depth, unstructured interview was conducted, enabling participants to share significant moments after the decease of the person they had taken care of and to share how they reconstruct their daily life. The phenomenon of reconstruction daily life of this participants' is revealed in the dynamic of the simultaneous relationship: with the past, recalling what was experienced, with the present, in the recognition of the self as well as in their continuous response as they return to the world and to life and, with the future, envisioning an imaginary of challenges and uncertainties. It is in everyday life that participants are reconnected with themselves, with others and with the world. Final Considerations: Through this study, nurses will be able to access the lived experience of these post-caregivers and to challenge themselves in the way they provide care, valuing the expertise to pay attention, improving their intervention in presence. The Integrated Continuous Care Teams in the Community Care Units could be challenged to strengthen support networks for family’s post-caregivers in cooperation with other partners and social resources.
- español
