Stakeholder engagement in Type 1 diabetes research, quality improvement, and Clinical Care

• Nicole Rioles ^[4] ; Christine March ^[1] ; Cynthia E. Muñoz ^[2] ; Jeniece Ilkowitz ^[5] ; Amy Ohmer ^[6] ; Risa M. Wolf ^[3]
  1. [1] University of Pittsburgh

     University of Pittsburgh

     City of Pittsburgh, Estados Unidos

     
  2. [2] University of Southern California

     University of Southern California

     Estados Unidos

     
  3. [3] Johns Hopkins University

     Johns Hopkins University

     Estados Unidos

     
  4. [4] T1D Exchange, Boston, MA, USA
  5. [5] Pediatric Diabetes Center, NYU Langone Health, New York, NY, USA
  6. [6] International Children's Advisory Network, Atlanta, GA, USA

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• Localización: Endocrinology and metabolism clinics of North America, ISSN 0889-8529, Vol. 53, Nº. 1, 2024 (Ejemplar dedicado a: Type 1 Diabetes), págs. 165-182
• Idioma: inglés
• Texto completo no disponible (Saber más ...)
• Resumen

  • The integration of stakeholder engagement (SE) in research, quality improvement (QI), and clinical care has gained significant traction. Type 1 diabetes is a chronic disease that requires complex daily management and care from a multidisciplinary team across the lifespan. Inclusion of key stakeholder voices, including patients, caregivers, health care providers and community advocates, in the research process and implementation of clinical care is critical to ensure representation of perspectives that match the values and goals of the patient population. This review describes the current framework for SE and its application to research, QI, and clinical care across the lifespan.