Biobanks for biomedical research: Evolution and future
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[1] Universidad del Desarrollo
Universidad del Desarrollo
Santiago, Chile
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- Localización: Handbook of bioethical decisions / coord. por Erick Valdés, Juan Alberto Lecaros Urzúa, Vol. 1, 2023 (Handbook of Bioethical Decisions. Volume I. Decisions at the Bench), ISBN 9783031294501, págs. 295-323
- Idioma: inglés
- Texto completo no disponible (Saber más ...)
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Resumen
For more than two decades, in the era of post-genomics and personalized precision medicine, biobanks for biomedical research have successfully fostered the development of basic and translational biomedical research. The expansion of biobanking has brought a wide and intense debate on ethical, legal and social implications (ELSI) when using large numbers of human biological samples and associated personal data. All these challenges are relatyed to the fact that these infrastructures allow several future research projects to be carried out along general lines of research, with the use of samples and sensitive information, such as genetic data, which can be shared internationally, and whose specific purpose the donor cannot know at the time of donation. In this chapter, I will address the challenges that have emerged at the different stages of the evolution of biobanks, from biobanks’ governance stage to the sustainability stage, through the harmonization and collaboration networks stage, in order to address the challenges biobanks will deal with in the near future.
