Electronic health records and patient registries in medical oncology departments in Spain

• N. Ribelles ^[1] ; I. Alvarez Lopez ^[9] ; A. Arcusa ^[10] ; J. I. Chacon ^[2] ; J. de la Haba ^[11] ; J. García Corbacho ^[12] ; J. Garcia Mata ^[3] ; C. Jara ^[4] ; J. M. Jerez ^[5] ; M. Lázaro Quintela ^[6] ; L. Leon Mateos ^[13] ; N. Ramirez Merino ^[14] ; A. Tibau ^[7] ; A. Garcia Palomo ^[8]
  1. [1] Hospital Universitario Virgen de la Victoria

     Hospital Universitario Virgen de la Victoria

     Málaga, España

     
  2. [2] Hospital Virgen de la Salud

     Hospital Virgen de la Salud

     Toledo, España

     
  3. [3] Complexo Hospitalario Universitario de Ourense

     Complexo Hospitalario Universitario de Ourense

     Ourense, España

     
  4. [4] Fundación Hospital Alcorcón

     Fundación Hospital Alcorcón

     Alcorcón, España

     
  5. [5] Universidad de Málaga

     Universidad de Málaga

     Málaga, España

     
  6. [6] Hospital Álvaro Cunqueiro

     Hospital Álvaro Cunqueiro

     Vigo, España

     
  7. [7] Hospital de la Santa Creu i Sant Pau

     Hospital de la Santa Creu i Sant Pau

     Barcelona, España

     
  8. [8] Complejo Asistencial Universitario de León

     Complejo Asistencial Universitario de León

     León, España

     
  9. [9] Medical Oncology Department, Hospital Universitario Donostia-BioDonostia, Donostia, Gipuzkoa, Spain
  10. [10] Oncology Department, Consorci Sanitari de Terrassa, Barcelona, Spain
  11. [11] Medical Oncology Department, Hospital Universitario Reina Sofía, Instituto de Investigación Biomédica de Córdoba (IMIBIC), Córdoba, Spain
  12. [12] Medical Oncology Department, Hospital Clinic/IDIBAPs, Barcelona, Spain
  13. [13] Medical Oncology Department, Complexo Hospitalario Universitario de Santiago de Compostela, Health Research Institute of Santiago (IDIS), Santiago de Compostela, Spain
  14. [14] Oncología Médica, Hospital Universitario Infanta Elena, Madrid, Spain

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• Localización: Clinical & translational oncology, ISSN 1699-048X, Vol. 23, Nº. 10, 2021, págs. 2099-2108
• Idioma: inglés
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• Resumen

  • Purpose We aimed to evaluate the current situation of electronic health records (EHRs) and patient registries in the oncol- ogy departments of hospitals in Spain.

    Methods This was a cross-sectional study conducted from December 2018 to September 2019. The survey was designed ad hoc by the Outcomes Evaluation and Clinical Practice Section of the Spanish Society of Medical Oncology (SEOM) and was distributed to all head of medical oncology department members of SEOM.

    Results We invited 148 heads of oncology departments, and 81 (54.7%) questionnaires were completed, with representation from all 17 Spanish autonomous communities. Seventy-seven (95%) of the respondents had EHRs implemented at their hospitals; of them, over 80% considered EHRs to have a positive impact on work organization and clinical practice, and 73% considered that EHRs improve the quality of patient care. In contrast, 27 (35.1%) of these respondents felt that EHRs worsened the physician–patient relationship and conveyed an additional workload (n = 29; 37.6%). Several drawbacks in the implementation of EHRs were identified, including the limited inclusion of information on both outpatients and inpatients, information recorded in free text data fields, and the availability of specific informed consent. Forty-six (56.7%) respondents had patient registries where they recorded information from all patients seen in the department.

    Conclusion Our study indicates that EHRs are almost universally implemented in the hospitals surveyed and are considered to have a positive impact on work organization and clinical practice. However, EHRs currently have several drawbacks that limit their use for investigational purposes.

    Clinical trial registration Not applicable