“Joven & Fuerte”: Program for Young Women with Breast Cancer in Mexico — Initial Results

• Autores: Cynthia Villarreal Garza, Andrea Castro Sánchez, Alejandra Platas de la Mora, Melina Miaja Avila, Alejandro Mohar Betancourt, Regina Barragan Carrillo, Alan Fonseca, Yoatzin Vega, Bertha Alejandra Martinez Cannon, Dione Aguilar Méndez, Enrique Bargalló Rocha, Servando Cardona Huerta, Omar Peña Curiel, Juan Matus Santos
• Localización: Revista de investigación clínica, ISSN 0034-8376, ISSN-e 2564-8896, Vol. 69, Nº. 4, 2017, págs. 223-228
• Idioma: inglés
• Enlaces
  • Texto completo (pdf)
• Resumen

  • Despite the high rates of breast cancer among young Mexican women, their special needs and concerns have not been systematically addressed. To fulfill these unsatisfied demands, we have developed “Joven & Fuerte: Program for Young Women with Breast Cancer in Mexico,” the first program dedicated to the care of young breast cancer patients in Latin America, which is taking place at the National Cancer Institute of Mexico and the two medical facilities of the Instituto Tecnológico y de Estudios Superiores de Monterrey.

    The program was created to optimize the complex clinical and psychosocial care of these patients, enhance education regarding their special needs, and promote targeted research, as well as to replicate this program model in other healthcare centers across Mexico and Latin America. From November 2013 to February 2017, the implementation of the “Joven & Fuerte” program has delivered specialized care to 265 patients, through the systematic identification of their particular needs and the provision of fertility, genetic, and psychological supportive services. Patients and families have engaged in pedagogic activities and workshops and have created a motivated and empowered community. The program developed and adapted the first educational resources in Spanish dedicated for young Mexican patients, as well as material for healthcare providers. As for research, a prospective cohort of young breast cancer patients was established to characterize clinicopathological features and psychosocial effects at baseline and during follow-up, as a guide for the development of specific cultural interventions addressing this vulnerable group. Eventually, it is intended that the program’s organization and structure can reach national and international interactions and serve as a platform for other countries.