SEOM recommendations on the structure and operation of hereditary cancer genetic counseling units (HCGCUs)

• Autores: E. Lastra Aras, Luis Robles Díaz, Carmen Guillén Ponce, Emilio Alba, Juan Jesús Cruz Hernández
• Localización: Clinical & translational oncology, ISSN 1699-048X, Vol. 15, Nº. 1, 2013, págs. 20-25
• Idioma: inglés
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• Dialnet Métricas: 1 Cita
• Resumen

  • Introduction Approximately 5 % of all cancer cases are hereditary. Cancer genetic counseling assesses individual and family risks of cancer, conducts genetic studies, interprets results, and advises patients regarding strategies for prevention and risk reduction. Currently, many networks of hereditary cancer genetic counseling units (HCGCUs) are integrated in the medical oncology services of most Spanish hospitals, which are comprised of multidisciplinary teams and offer high-quality care for the treatment of hereditary cancer.

    Materials and methods The Spanish Society of Medical Oncology (SEOM) analyzed key issues involving the integration of HCGCUs into the National Health Service. These included basic compliance issues by these units regarding their operation and organization, as well as prerequisites in quality control thereof.

    Results This document describes the specific roles and clinical processes performed in HCGCUs in addition to basic services provided by molecular diagnostic laboratories. It also provides a summary on the coordination of care across different levels for patients and families with hereditary cancers. Finally, this document describes the human and material resources needed for the organization of HCGCUs.

    Conclusions SEOM has been a pioneer in the creation and development of HCGCUs. This paper seeks to ensure high-quality care to individuals and families with inherited susceptibility to cancer in Spain.