Assessment of experience, fears, barriers and adherence to insulin injection among the parents of early-diagnosed children with Diabetes.

• Barakat, Muna ^[5] ; Hallit, Souheil ^[1] ; Malaeb, Diana ^[2] ; Sallam, Malik ^[6] ; Al-Jamal, Marah ^[7] ; Abuarab, Sara Feras ^[7] ; Ibrahim, Sara ^[3] ; Alassaf, Abeer ^[3] ; Odeh, Rasha ^[3] ; Alshammari, Huda M. ^[4]
  1. [1] Holy Spirit University of Kaslik

     Holy Spirit University of Kaslik

     Líbano

     
  2. [2] Gulf Medical University

     Gulf Medical University

     Emiratos Árabes Unidos

     
  3. [3] University of Jordan

     University of Jordan

     Jordania

     
  4. [4] Northern Border University

     Northern Border University

     Arabia Saudí

     
  5. [5] Department of Clinical Pharmacy and Therapeutics, School of Pharmacy, Applied Science Private University, MEU Research Unit, Middle East University, Amman 541350, Jordan
  6. [6] Department of Pathology, Microbiology and Forensic Medicine, School of Medicine, the University of Jordan, Department of Clinical Laboratories and Forensic Medicine, Jordan University Hospital, Department of Translational Medicine, Faculty of Medicine, Lund University, 22184 Malmö, Sweden,Amman 11942, Jordan.
  7. [7] Department of Clinical Pharmacy and Therapeutics, School of Pharmacy, Applied Science Private University, Amman 541350, Jordan.

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• Localización: Pharmacy Practice (Granada), ISSN-e 1886-3655, Vol. 22, Nº. 3, 2024 (Ejemplar dedicado a: Jul-Sep)
• Idioma: inglés
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  • Background: Regardless of the indisputable benefits of insulin therapy, initiating insulin for newly diagnosed type-1 children with diabetes might be intimidating for parents. This study assesses the experience, fears, barriers and adherence to insulin use among the parents of early-diagnosed children with diabetes. Methods: A cross-sectional online survey was utilized for data collection from 218 participants between February and March 2023 in Jordan. The survey consisted of six sections to evaluate and assess: sociodemographic for both children with diabetes and their parents, the experience of using the insulin, the diabetes fear of self-injecting questionnaire (D-FISQ), the barriers for insulin administration including both sociocultural and other insulin-related factors, and insulin adherence. Results: More than 80% of the participants perceived a number of sociocultural barriers to insulin administration such as the tendency for addiction, lower efficiency of insulin than oral medication, and preference for complementary medicine over insulin. More than two-thirds of the participants complained of insulin-related barriers such as infections and sudden death in addition to learning the correct injection method. The general fear level was low, 8.56±7.87 (out of 45); however, more fear of insulin injection and self-testing was significantly associated with both sociocultural and insulin-related barriers, especially at the younger age. Conclusion: The results of this study indicated that parents have several barriers to insulin administration, mainly related to insulin injection. Therefore, more awareness about insulin therapy can help adjust the cooperation of patients, acceptance of treatment, ending with improving the quality of life and well-being..