The vulnerability of data genetics holders in the biotechnology revolution

• Boff, Salete Oro ^[1] ; Alcantara, Ana Julia Oliveira ^[1]
  1. [1] Universidade do Vale do Rio dos Sinos

     Universidade do Vale do Rio dos Sinos

     Brasil

     
• Localización: Revista de Direitos e Garantias Fundamentais, ISSN-e 2175-6058, Vol. 25, Nº. 1, 2024 (Ejemplar dedicado a: Dossiê Bioética, Direitos Humanos e Democracia), págs. 255-284
• Idioma: portugués
• Enlaces
  • Texto completo (pdf)
• Resumen

  • Technological advances in the genetic area arouse interest, as they make it possible to diagnose and eliminate genetic diseases at an increasingly earlier stage, even at an embryonic stage. However, the use of data obtained from testing may lead to discriminatory consequences. The purpose of this work is to analyze the degree of vulnerability of genetic data holders in the information society, in a context in which personal data are at the center of struggles for power. The increase in the economic value of information, combined with the ease of acquiring, maintaining and storing data, such as genetic data, makes a global debate on data protection, the potential for economic exploitation and the protection of its holders essential