Ethics and medical education in communicating the prognosis of pediatric acute lymphoblastic leukemia

• Barroso Sánchez, Gustavo ^[1] ; Gámez Perez , Anadely ; Fajardo Borges , Catherine Milagros ^[2]
  1. [1] Universidad de Ciencias Médicas de la Habana

     Universidad de Ciencias Médicas de la Habana

     Cuba

     
  2. [2] Facultad de Ciencias Médicas de Artemisa, Filial de ciencias médicas Manuel Piti Fajardo. San Cristóbal. Artemisa. Cuba
• Localización: Seminars in Medical Writing and Education, ISSN-e 3008-8127, Vol. 3, Nº. 0, 2024 (Ejemplar dedicado a: Seminars in Medical Writing and Education)
• Idioma: inglés
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• Resumen

  • Introduction: Communication of prognosis in pediatric hematology and oncology constitutes a critical process. This process affects decision-making, adherence to treatment and the psycho-emotional well-being of families. In pediatric acute lymphoblastic leukemia, advances in prognostic biomarkers allow better risk stratification; however, the interpretation and ethical transmission of this data represents a challenge.Objective: to present the ethical aspects of prognosis communication, prognosis communication models and strategies that can improve the training of health professionals in this context.Methods: An exhaustive search was carried out in databases such as Scielo, Pubmed, Science Direct, Redalyc, Google Scholar, and updated articles published in the last 5 years in English and Spanish were used as references. An analysis and summary of the bibliography was carried out and the most important aspects related to the topic were taken.Conclusions: Effective communication of prognosis in pediatric acute lymphoblastic leukemia requires an integrative ethical and educational approach. Training professionals in patient-centered communication strategies is essential to improve the experience and quality of life of patients and their families. The adoption of adaptive models and the incorporation of innovative training strategies emerge as key elements to face the challenges inherent to pediatric oncology.